Mitochondrial donation and ‘the right to know’

Brandt, Reuven (2016) Mitochondrial donation and ‘the right to know’. Journal of Medical Ethics, 42 (10). pp. 678-684. ISSN 0306-6800

Abstract

In this paper, I examine two key arguments advanced by the Human Fertilization and Embryology Authority (HFEA) and the Nuffield Council justifying anonymous mitochondrial donation, even though the ‘right to know’ is recognised in standard gamete donation. I argue that the two arguments they offer, what I call the argument from genetic connection and the argument from personal characteristics, are unsuccessful. However, I provide additional reasons for why recognising the right to know in gamete donation but not in mitochondrial donation may be justified. I further argue that the status quo in the UK, which is to not recognise a right to know in mitochondrial donation, is provisionally acceptable.