The experiences of being diagnosed with Parkinson’s Disease

Warren, Emma and Eccles, Fiona Juliet Rosalind and Travers, Vicky and Simpson, Jane (2016) The experiences of being diagnosed with Parkinson’s Disease. British Journal of Neuroscience Nursing, 12 (6). pp. 288-296. ISSN 1747-0307

PDF (warrensrpfinal-pure)
warrensrpfinal_pure.pdf - Accepted Version
Download (1MB)

Abstract

Being diagnosed with a chronic illness such as Parkinson’s disease (PD) can have a considerable psychological impact on a person’s life. However, this has been little explored and therefore it is unclear what support may be most beneficial at this time. This study therefore explored personal experiences of being diagnosed with PD. Six participants were interviewed and data analysed using thematic analysis. Three over-arching themes emerged: 1) “Understanding it is an important thing” – The value of knowledge; 2) "You’ve got to get used to accepting the fact that you need help" - The social implications of being diagnosed with PD; and 3) "I think you need to talk to somebody" - The importance of supportive others. The process of diagnosis was complex and often challenging for participants, with respect to their own understanding and that of others. Recommendations for future practice within specialist PD services are made, to improve the support that is offered at this time.