Healthcare Providers’ Perspectives on the Communication Challenges When Discussing Palliative Sedation : A Qualitative Study Across Eight European Countries

Pozsgai, Éva and Busa, Csilla and Brunsch, Holger and Van der Elst, Michael and Payne, Sheila and Preston, Nancy and Koper, Ian and Hasselaar, Jeroen and Roji, Rocio and Adile, Claudio and Mosoiu, Daniela and Ancuta, Camelia and Csikós, Ágnes (2025) Healthcare Providers’ Perspectives on the Communication Challenges When Discussing Palliative Sedation : A Qualitative Study Across Eight European Countries. Journal of Clinical Medicine, 14 (18): 6653. ISSN 2077-0383

Abstract

Background/Objectives: Studies have shown that healthcare providers struggle to discuss difficult end-of-life issues, including palliative sedation (PS), with patients and relatives. This qualitative study aimed to evaluate communication challenges related to PS among healthcare providers in eight European countries. Methods: In each country, two clinical settings providing palliative care were selected. Two moral case deliberation (MCD) sessions were conducted, each with 3 to 9 palliative healthcare professionals (HCPs). They discussed patient cases involving PS and refractory symptom management. Sessions were audio-recorded, transcribed, anonymized, and analyzed using a framework analysis. Results: Key issues included core communication values—open, empathetic, and honest dialogue—which were consistent across countries but varied in practice. In The Netherlands, Germany, Belgium, and the UK, communication prioritized patient autonomy through timely discussions and family dialogue. In Spain and Italy, family-centered communication approaches predominated, while in Romania and Hungary, tendencies for selective disclosure were also evident, along with delegated decision-making and complex family dynamics. Certain challenges reflected professional experience rather than national culture. Nurses mediated across contexts, while terminology surrounding palliative sedation remained a source of ambiguity. Conclusions: This is the first study to present HCPs’ perceptions of communication issues related to PS across Europe. Despite variations between settings, consistently open dialogue among patients, families, and HCPs emerged as the most valued element. These findings highlight the need to better understand how end-of-life communication about PS varies in practice and underscore the importance of considering healthcare providers’ real-world experiences to improve communication with patients and families.