Palliative care provision in long-term care facilities differs across Europe : Results of a cross-sectional study in six European countries (PACE)

ten Koppel, M. and Onwuteaka-Philipsen, B.D. and Van den Block, L. and Deliens, L. and Gambassi, G. and Heymans, M.W. and Kylänen, M. and Oosterveld-Vlug, M.G. and Pasman, H.R.W. and Payne, S. and Smets, T. and Szczerbińska, K. and Twisk, J.W.R. and van der Steen, J.T. and De Groote, Z. and Mammarella, F. and Mercuri, M. and Pivodic, L. and Pac, A. and Rossi, P. and Segat, I. and Sowerby, E. and Stodolska, A. and van Hout, H. and Wichmann, A. and Adang, E. and Andreasen, P. and Finne-Soveri, H. and Collingridge Moore, D. and Froggatt, K. and Kijowska, V. and Van Den Noortgate, N. and Vernooij-Dassen, M. and PACE, on behalf of (2019) Palliative care provision in long-term care facilities differs across Europe : Results of a cross-sectional study in six European countries (PACE). Palliative Medicine, 33 (9). pp. 1176-1188. ISSN 0269-2163

Abstract

Background: While the need for palliative care in long-term care facilities is growing, it is unknown whether palliative care in this setting is sufficiently developed. Aim: To describe and compare in six European countries palliative care provision in long-term care facilities and to assess associations between patient, facility and advance care planning factors and receipt and timing of palliative care. Design: Cross-sectional after-death survey regarding care provided to long-term care residents in Belgium, England, Finland, Italy, the Netherlands and Poland. Generalized estimating equations were used for analyses. Setting/participants: Nurses or care assistants who are most involved in care for the resident. Results: We included 1298 residents in 300 facilities, of whom a majority received palliative care in most countries (England: 72.6%–Belgium: 77.9%), except in Poland (14.0%) and Italy (32.1%). Palliative care typically started within 2 weeks before death and was often provided by the treating physician (England: 75%–the Netherlands: 98.8%). A palliative care specialist was frequently involved in Belgium and Poland (57.1% and 86.7%). Residents with cancer, dementia or a contact person in their record more often received palliative care, and it started earlier for residents with whom the nurse had spoken about treatments or the preferred course of care at the end of life. Conclusion: The late initiation of palliative care (especially when advance care planning is lacking) and palliative care for residents without cancer, dementia or closely involved relatives deserve attention in all countries. Diversity in palliative care organization might be related to different levels of its development.