Public health, research and rights:the perspectives of deliberation panels with politically and socially active disabled people

Berghs, Maria and Atkin, Karl and Graham, Hilary and Hatton, Chris and Thomas, Carol (2017) Public health, research and rights:the perspectives of deliberation panels with politically and socially active disabled people. Disability and Society, 32 (7). pp. 945-965. ISSN 0968-7599

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Abstract

Public health research purports to provide the evidence base for policies, programmes and interventions to improve the health of a population. However, there is increasing awareness that the experiences of disabled people have played little part in informing this evidence base. This paper discusses one aspect of a study commissioned by England's National Institute for Health Research (NIHR) to review the implications for public health of theories and models of disability. This part of the study focused on the development of a tool or decision aid to promote ethical inclusion of disabled people in public health randomised controlled trials (RCTs) and evaluative research. The tool was introduced at four regional deliberating panels' involving politically and socially active disabled people. In addition, we held a panel with public health professionals. The deliberation panels debated how the focus of public health was narrowing, why disability was excluded and positive and negative issues with using rights to guide research and evaluative practice. Politically active disabled people argued for a social model of human rights to guide any rights based tools or decision aids in public health and disability research.

Item Type: Journal Article
Journal or Publication Title: Disability and Society
Additional Information: This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Society on 24/06/2017, available online: http://www.tandfonline.com/10.1080/09687599.2017.1339588
Uncontrolled Keywords: /dk/atira/pure/subjectarea/asjc/3600
Subjects:
Departments: Faculty of Health and Medicine > Health Research
ID Code: 87801
Deposited By: ep_importer_pure
Deposited On: 01 Aug 2018 09:08
Refereed?: Yes
Published?: Published
Last Modified: 17 Feb 2020 03:40
URI: https://eprints.lancs.ac.uk/id/eprint/87801

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