The Experiences of Staff Who Support People with Intellectual Disability on Issues About Death, Dying, and Bereavement:a metasynthesis

Lord, Ailsa and Field, Stephen John and Smith, Ian Craig (2017) The Experiences of Staff Who Support People with Intellectual Disability on Issues About Death, Dying, and Bereavement:a metasynthesis. Journal of Applied Research in Intellectual Disabilities, 30 (6). pp. 1007-1021. ISSN 1360-2322

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Abstract

Background: Historically, people with intellectual disabilities have tended to be excluded from knowing about death, dying, and bereavement. Staff in intellectual disability services can play a valuable role in improving understanding of these issues in those they support. This qualitative metasynthesis aimed to understand the experiences of staff supporting adults with intellectual disabilities with issues of death, dying, and bereavement. Method: Thirteen papers were identified following a systematic review of six databases. Results: Three themes were developed following a lines-of-argument synthesis: (1) Talking about death is hard: Negotiating the uncertainty in death, dying, and bereavement; (2) The commitment to promoting a “good death”; and (3) The grief behind the professional mask. “A cautious silence: The taboo of death,” was an overarching theme. Conclusions: A more open culture around issues of death, dying, and bereavement in intellectual disability settings is essential and could be promoted through staff training and support.

Item Type:
Journal Article
Journal or Publication Title:
Journal of Applied Research in Intellectual Disabilities
Additional Information:
This is the peer reviewed version of the following article: Lord AJ, Field S, Smith IC. The experiences of staff who support people with intellectual disability on issues about death, dying and bereavement: A metasynthesis. J Appl Res Intellect Disabil. 2017;30:1007–1021. https://doi.org/10.1111/jar.12376 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jar.12376/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.
Uncontrolled Keywords:
/dk/atira/pure/subjectarea/asjc/3200/3204
Subjects:
ID Code:
86302
Deposited By:
Deposited On:
13 May 2017 02:36
Refereed?:
Yes
Published?:
Published
Last Modified:
27 Sep 2020 03:53