The experiences of parenting a child with an acquired brain injury : a metasynthesis of the qualitative literature

Tyerman, Emma and Eccles, Fiona Juliet Rosalind and Gray, Victoria (2017) The experiences of parenting a child with an acquired brain injury : a metasynthesis of the qualitative literature. Brain Injury, 31 (12). pp. 1553-1563. ISSN 0269-9052

[thumbnail of Parents experiences lit review - PURE version]
Preview
PDF (Parents experiences lit review - PURE version)
Parents_experiences_lit_review_PURE_version.pdf - Accepted Version
Available under License Creative Commons Attribution-NonCommercial.

Download (646kB)

Abstract

Objective. To systematically review and then synthesize the qualitative literature on the experience of parenting a child with an acquired brain injury (ABI). Design. Systematic literature review and meta-synthesis Methods. A systematic search of the literature was conducted in four databases. Papers which met the inclusion criterion were assessed for quality using the Critical Skills Appraisal Programme (CASP) tool and then synthesized according to Noblit and Hare’s (1988) guidelines for meta-ethnography. Results. Of the 4855 papers retrieved, 17 met the inclusion criteria. Synthesis resulted in three themes: (1) Disconnection: Cut off from internal emotions and isolated from others; (2) Seeking understanding and support to manage in an insecure world; and (3) New parent to a different child. Conclusions. Having a child with an ABI leads to many challenges for parents. These include feeling insecure, isolated from others and struggling to adapt to the different roles required to parent their different child. Clinical implications highlight the need for specialist support that is ongoing after discharge, including specialist knowledge and understanding of ABI and opportunities for peer support.

Item Type:
Journal Article
Journal or Publication Title:
Brain Injury
Additional Information:
This is an Accepted Manuscript of an article published by Taylor & Francis in Brain Injury on 27/07/2017, available online: http://www.tandfonline.com/101.1080/02699052.2017.1341999
Uncontrolled Keywords:
/dk/atira/pure/subjectarea/asjc/2700/2728
Subjects:
?? clinical neurology ??
ID Code:
86230
Deposited By:
Deposited On:
05 May 2017 15:36
Refereed?:
Yes
Published?:
Published
Last Modified:
15 Jan 2024 00:13