Experiences of caring for a family member with Parkinson’s disease : a meta-synthesis

Theed, Rachael and Eccles, Fiona Juliet Rosalind and Simpson, Jane (2017) Experiences of caring for a family member with Parkinson’s disease : a meta-synthesis. Aging and Mental Health, 21 (10). pp. 1007-1016. ISSN 1360-7863

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Objective: The aim of this qualitative meta-synthesis was to search and then synthesise family caregivers’ experiences of providing care to individuals with Parkinson's disease (PD). Method: A systematic search resulted in the identification of 11 qualitative studies. Noblit and Hare's seven-stage approach was used to provide a higher-order interpretation of how family caregivers’ experienced the effects of taking on a caregiving role. Results: The process of reciprocal translation resulted in four overarching themes: (1) the need to carry on as usual – ‘the caregiver must continue with his life’; (2) the importance of support in facilitating coping – ‘I'm still going back to the support group’; (3) the difficult balancing act between caregiving and caregiver needs – ‘I cannot get sick because I'm a caregiver’; (4) conflicts in seeking information and knowledge – ‘maybe better not to know’. Conclusion: The themes reflected different aspects of family caregivers’ lives that were affected as a result of caring for a relative diagnosed with PD and these raise challenges for more simplistic theories of family caring and appropriate support structures. The findings also highlight several recommendations for clinical practice.

Item Type:
Journal Article
Journal or Publication Title:
Aging and Mental Health
Additional Information:
This is an Accepted Manuscript of an article published by Taylor & Francis in Aging & Mental Health on 02/11/2016, available online: http://www.tandfonline.com/10.1080/13607863.2016.1247414
Uncontrolled Keywords:
?? parkinson's diseasecaregivercaregivingfamilygerontologygeriatrics and gerontologypsychiatry and mental healthphychiatric mental health ??
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Deposited On:
31 Oct 2016 09:32
Last Modified:
15 Jan 2024 00:13