Integrated palliative care in Europe:a qualitative systematic literature review of empirically-tested models in cancer and chronic disease

Siouta, Naouma and van Beek, Karen and van der Eerden, Marlieke and Preston, Nancy Jean and Hasselaar, Jeroen and Hughes, Sean and Garralda, Eduardo and Centeno, Carlos and Csikos, Agnes and Groot, Marieke and Radbruch, Lukas and Payne, Sheila Alison and Menten, Johan (2016) Integrated palliative care in Europe:a qualitative systematic literature review of empirically-tested models in cancer and chronic disease. BMC Palliative Care, 15 (56). ISSN 1472-684X

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Abstract

Background Integrated Palliative Care (PC) strategies are often implemented following models, namely standardized designs that provide frameworks for the organization of care for people with a progressive life-threatening illness and/or for their (in)formal caregivers. The aim of this qualitative systematic review is to identify empirically-evaluated models of PC in cancer and chronic disease in Europe. Further, develop a generic framework that will consist of the basis for the design of future models for integrated PC in Europe. Methods Cochrane, PubMed, EMBASE, CINAHL, AMED, BNI, Web of Science, NHS Evidence. Five journals and references from included studies were hand-searched. Two reviewers screened the search results. Studies with adult patients with advanced cancer/chronic disease from 1995 to 2013 in Europe, in English, French, German, Dutch, Hungarian or Spanish were included. A narrative synthesis was used. Results 14 studies were included, 7 models for chronic disease, 4 for integrated care in oncology, 2 for both cancer and chronic disease and 2 for end-of-life pathways. The results show a strong agreement on the benefits of the involvement of a PC multidisciplinary team: better symptom control, less caregiver burden, improvement in continuity and coordination of care, fewer admissions, cost effectiveness and patients dying in their preferred place. Conclusion Based on our findings, a generic framework for integrated PC in cancer and chronic disease is proposed. This framework fosters integration of PC in the disease trajectory concurrently with treatment and identifies the importance of employing a PC-trained multidisciplinary team with a threefold focus: treatment, consulting and training.

Item Type:
Journal Article
Journal or Publication Title:
BMC Palliative Care
Additional Information:
© 2016 The Author(s). Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
Uncontrolled Keywords:
/dk/atira/pure/subjectarea/asjc/2700
Subjects:
ID Code:
80376
Deposited By:
Deposited On:
02 Aug 2016 15:42
Refereed?:
Yes
Published?:
Published
Last Modified:
29 Mar 2020 04:43