Caring for a dying spouse at the end of life:“It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences

Turner, Janet Mary and King, Claire and Milligan, Christine and Thomas, Carol and Brearley, Sarah Grace and Seamark, David and Wang, Xu and Blake, Susan and Payne, Sheila Alison (2016) Caring for a dying spouse at the end of life:“It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences. Age and Ageing, 45 (3). pp. 421-426. ISSN 0002-0729

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Abstract

Background: Older people aged 80 and over are increasingly providing end of life care to spouses at home, and often do so for long periods of time, whilst also trying to manage their own illnesses and disabilities. Little of the research on older spousal carers has focussed on the oldest carers, hence the needs of this particular population are not fully known. Objective: To explore the experiences of the ‘oldest carers’ in caring for a dying spouse at home. Methods: Secondary analysis was undertaken on a subset of data from a larger qualitative interview study; this dataset comprised 17 interviews from participants aged 80 or over. Framework analysis methods were used, with items derived from the thematic analysis of the main study. Results: The oldest carers in this subset demonstrated high levels of resilience, and the ability to adapt to their caring role. Caring until death was accepted as an integral part of the commitment made to their partner as part of the ‘wedding contract’. Carers felt they benefitted from the support provided by family, friends and care services; however their own care needs were not always recognised by health and social care services. Conclusions: These findings underscore the complexity of the oldest carers’ experiences and challenges in times of illness and end of life. Healthcare professionals should be alerted to the myriad ways caregiving is enacted in serious illness and seek opportunities for developing supportive interventions specifically for older carers.

Item Type:
Journal Article
Journal or Publication Title:
Age and Ageing
Additional Information:
This is a pre-copy-editing, author-produced PDF of an article accepted for publication in Age and Aging following peer review. The definitive publisher-authenticated version Mary Turner, Claire King, Christine Milligan, Carol Thomas, Sarah G. Brearley, David Seamark, Xu Wang, Susan Blake, and Sheila Payne Caring for a dying spouse at the end of life: ‘It's one of the things you volunteer for when you get married’: a qualitative study of the oldest carers' experiences Age Ageing (2016) 45 (3): 421-426 first published online April 7, 2016 doi:10.1093/ageing/afw047 is available online at: http://ageing.oxfordjournals.org/content/45/3/421
Uncontrolled Keywords:
/dk/atira/pure/subjectarea/asjc/1300/1302
Subjects:
ID Code:
78260
Deposited By:
Deposited On:
16 Feb 2016 11:16
Refereed?:
Yes
Published?:
Published
Last Modified:
22 Sep 2020 02:32