Governing UK Biobank:the importance of ensuring public trust

Tutton, Richard and Kaye, Jane and Hoeyer, Klaus (2004) Governing UK Biobank:the importance of ensuring public trust. Trends in Biotechnology, 22 (6). pp. 284-285. ISSN 1879-3096

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Abstract

In the autumn of 2003, UK Biobank published the first draft of its Ethics and Governance Framework. Subsequently, this document has been available for interested parties to comment on and the UK Biobank Board of Directors is expected to adopt the final version in 2004. Here, we aim to contribute to this process and highlight to a wider audience some of the inconsistencies in the issues of consent, governance and right of withdrawal that emerge from the draft of the Framework. These issues will have implications for securing the public trust and long-term support that the success of the project depends on. Therefore, they must be considered carefully because the UK Biobank will be the first ever genetic database of a general population of this size to become operational, and will be used as a model for other projects of this kind.

Item Type: Journal Article
Journal or Publication Title: Trends in Biotechnology
Departments: Faculty of Arts & Social Sciences > Sociology
ID Code: 51382
Deposited By: ep_importer_pure
Deposited On: 24 Nov 2011 09:25
Refereed?: Yes
Published?: Published
Last Modified: 10 Jun 2019 20:31
URI: https://eprints.lancs.ac.uk/id/eprint/51382

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