Identifying the concerns of informal carers in palliative care.

Payne, Sheila and Smith, P. and Dean, S. (1999) Identifying the concerns of informal carers in palliative care. Palliative Medicine, 13 (1). pp. 37-44. ISSN 1477-030X

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The purpose of this preliminary study was to identify the perceived support needs of informal carers (families and friends) of cancer patients receiving palliative care in the community. Changes in policy mean that increasing numbers of palliative care patients receive the majority of their care at home. This potentially places heavy demands on families and friends. Thirty-nine informal carers were recruited from two areas in southern England. Data were obtained on psychological morbidity (General Health Questionnaire), and caregiving burden (Carer Strain Index), and a semistructured interview was used to elicit data on perceptions of caring. Results indicate that 33 (84%) reported above normal levels of psychological distress and 16 (41%) experienced high levels of strain related to caregiving. Younger age and being female were found to be correlated with psychological morbidity and strain. Participants also reported life restrictions, emotional distress and limited support.

Item Type:
Journal Article
Journal or Publication Title:
Palliative Medicine
Uncontrolled Keywords:
?? caregivers • family • home nursing • palliative care • social problemsanesthesiology and pain medicinemedicine(all)r medicine (general) ??
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Deposited On:
25 Mar 2010 17:00
Last Modified:
28 Nov 2023 10:46