“When our siblings are in pain, we might be shunted to the side, but it doesn’t mean we aren’t suffering too” : Experiences of Supporting a Sibling with Psychosis and Voice-Hearing

Rodell, Sadie and Parry, Sarah (2024) “When our siblings are in pain, we might be shunted to the side, but it doesn’t mean we aren’t suffering too” : Experiences of Supporting a Sibling with Psychosis and Voice-Hearing. PhD thesis, Lancaster University.

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Abstract

Family members of individuals experiencing voice-hearing and/or psychosis face significant challenges, yet little is known about the sibling experience. This thesis sought to understand the needs of this under-represented population. Section one presents a literature review exploring the experiences of people who have a sibling with psychosis. A systematic search of six databases was conducted, identifying 12 papers for inclusion, which were synthesised using a meta-ethnographic approach. Four third order constructs emerged: (a) Siblings as pillars: navigating roles and responsibilities, (b)Navigating relationships amidst challenges, (c) Vast emotional landscapes: navigating challenges, grief, and future worries, and (d) Finding ways to cope. These findings highlight the considerable emotional and relational impacts psychosis has on siblings. Clinical implications for sibling support and future research are discussed. Section two reports an empirical study exploring the narratives of individuals with a sibling who hears voices during adolescence. Fourteen participants completed an online qualitative survey. Three narrative chapters were constructed from their stories using Foucauldian-informed Narrative Analysis. The first chapter illustrates participants’ first thoughts and reactions surrounding voice-hearing in the context of wider societal discourses, and how their understanding changed over time. The second chapter highlights shifts in roles and relationships both within and outside of the family context. The final chapter describes b experiences of sourcing and accessing support for both their sibling and themselves. Together, these emancipatory chapters highlight participants’ journey in their relationship with themselves, with others, and with voice-hearing. The findings highlight profound impacts of voice-hearing on siblings and how stigma exacerbates this impact. Clinical implications focussed on tailoring interventions to include siblings, along with areas of future research, are discussed. Section three includes a critical appraisal of the project, including the management of researcher views and assumptions, and consideration of systemic and societal stigma surrounding voice-hearing and psychosis.