‘We are still here, we are survivors’ : patients’ experiences of attending a multidisciplinary group-based support programme following subarachnoid haemorrhage

Storey, Alice and Sheldrick, Russell and Dulhanty, Louise and Zarotti, Nicolò (2024) ‘We are still here, we are survivors’ : patients’ experiences of attending a multidisciplinary group-based support programme following subarachnoid haemorrhage. Disability and Rehabilitation. ISSN 0963-8288

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Text (SAH_Manuscript_Final_Accepted) - Accepted Version
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Text (SAH_Manuscript_Final_Accepted) - Accepted Version
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Text (SAH_Manuscript_Final_Accepted) - Accepted Version
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Text (SAH_Manuscript_Final_Accepted)
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Abstract

Purpose: People who survive a subarachnoid haemorrhage (SAH) often face enduring health challenges including physical disability, fatigue, cognitive impairments, psychological difficulties, and reduced quality of life. While group interventions have shown positive results in addressing similar issues in chronic conditions, the evidence involving SAH specifically is still sparse. This service evaluation aimed to explore SAH survivors’ experiences of attending a multidisciplinary group-based support programme tailored to address unmet needs identified in previous literature, with the ultimate aim to refine future iterations of the programme and improve quality of care post-SAH. Materials and Methods: Semi-structured interviews were carried out with 12 individuals who attended the programme. The resulting data were analysed thematically. Results: Four overarching themes emerged from the analysis: 1) Barriers to accessing support after a SAH, 2) Factors acting as enablers of recovery, 3) Sharing lived experience to support one another, 4) Feeling connected while navigating a group format. Conclusions: Lack of communication, fear, loneliness, and cognitive impairments can act as barriers to engagement with support, while acceptance and adjustment, holistic multidisciplinary input, and psychological support may represent successful enablers of recovery. Implications for future iterations of the programme as well as clinical rehabilitation and service development are discussed.