The change of intimate relationship between people with Alzheimer's disease and their adult child caregivers : An interpretative phenomenological analysis

Lyu, Jihui and Jiang, Wenjing and Xiong, Qian and Li, Wenjie and li, Mo and Hu, Yueqing and Jia, Dongmei and Gao, Wenchao and Mu, Haiyan and Ma, Zongjuan (2024) The change of intimate relationship between people with Alzheimer's disease and their adult child caregivers : An interpretative phenomenological analysis. Dementia. ISSN 1471-3012

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Abstract

This study aims to explore the change of intimate relationship between people with Alzheimer’s disease and their adult child caregivers as the disease progresses. Twelve adult child caregivers were recruited through purposive sampling. Explanatory phenomenological analysis was conducted to analyse data collected by semi-structured in-depth interviews. This study found a dynamically changing relationship between adult child caregivers and their parents with Alzheimer’s disease during care giving that evolved with the progress of the disease. The relationship was the most intimate in the middle stage of the disease for most caregivers and a new reciprocal relationship developed due to caregiving. Caregivers experienced different degrees of self-growth when providing care, though caregiver burdens were common. The positive experience and perception of caregivers were important for improving the quality of life for adult child caregivers of people with Alzheimer’s disease.