Understanding breast cancer survivors’ information-seeking behaviours and overall experiences:a comparison of themes derived from social media posts and focus groups

Currin-McCulloch, J. and Stanton, A. and Boyd, R. and Neaves, M. and Jones, Barbara (2020) Understanding breast cancer survivors’ information-seeking behaviours and overall experiences:a comparison of themes derived from social media posts and focus groups. Psychology and Health. pp. 1-18. ISSN 0887-0446

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Abstract

Objective: Using two different analysis techniques, this study explored differences and similarities in information-seeking discourse and overall breast cancer experiences between posters to a Reddit board and breast cancer survivor focus groups. Design: This study incorporates two qualitative methods for determining themes in breast cancer survivors’ information-seeking behaviours and overall cancer experiences. First, posts from a breast cancer-specific Reddit community were extracted and analysed using the meaning extraction method (MEM) to determine core themes. Then, investigators performed a thematic analysis of two focus groups of breast cancer survivors (N = 18). Finally, themes derived from each analysis method were compared. Main Outcome Measures: Outcome measures include themes extracted from Reddit posts and themes generated from breast cancer survivor focus groups. Results: Findings between qualitative methodologies represent similar yet nuanced themes in survivors’ discourse. The MEM resulted in seven themes: diagnosis, treatment process, social support, existentialism, risk, information-seeking and surgery. Focus groups revealed the same initial four MEM themes plus the following: disclosure, coping and fears. Conclusions: The MEM is a cost-effective research mechanism for informing common themes of experiences of cancer patients and survivors and may offer initial data to guide psychosocial oncology research design and recruitment.

Item Type:
Journal Article
Journal or Publication Title:
Psychology and Health
Additional Information:
This is an Accepted Manuscript of an article published by Taylor & Francis in Psychology and Health on 13/07/2020, available online:  https://www.tandfonline.com/doi/abs/10.1080/08870446.2020.1792903
Uncontrolled Keywords:
/dk/atira/pure/subjectarea/asjc/3200/3202
Subjects:
ID Code:
145969
Deposited By:
Deposited On:
12 Aug 2020 14:40
Refereed?:
Yes
Published?:
Published
Last Modified:
15 Sep 2020 05:12