Miranda, R. and van der Steen, J.T. and Smets, T. and Van den Noortgate, N. and Deliens, L. and Payne, S. and Kylänen, M. and Szczerbińska, K. and Gambassi, G. and Van den Block, L. and PACE, on behalf of (2020) Comfort and clinical events at the end of life of nursing home residents with and without dementia : The six-country epidemiological PACE study. International Journal of Geriatric Psychiatry. ISSN 0885-6230
Full text not available from this repository.Abstract
Objectives: We aimed to investigate the occurrence rates of clinical events and their associations with comfort in dying nursing home residents with and without dementia. Methods: Epidemiological after-death survey was performed in nationwide representative samples of 322 nursing homes in Belgium, Finland, Italy, the Netherlands, Poland, and England. Nursing staff reported clinical events and assessed comfort. The nursing staff or physician assessed the presence of dementia; severity was determined using two highly discriminatory staff-reported instruments. Results: The sample comprised 401 residents with advanced dementia, 377 with other stages of dementia, and 419 without dementia (N = 1197). Across the three groups, pneumonia occurred in 24 to 27% of residents. Febrile episodes (unrelated to pneumonia) occurred in 39% of residents with advanced dementia, 34% in residents with other stages of dementia and 28% in residents without dementia (P =.03). Intake problems occurred in 74% of residents with advanced dementia, 55% in residents with other stages of dementia, and 48% in residents without dementia (P