Policy implications, eligibility and demographic characteristics of people with intellectual disability who have access to self-directed funding in the United States

Cherry, E and Stancliffe, Roger J. and Emerson, Eric and Tichá, R (2021) Policy implications, eligibility and demographic characteristics of people with intellectual disability who have access to self-directed funding in the United States. Intellectual and Developmental Disabilities, 59 (2). pp. 123-140. ISSN 1934-9556

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Abstract

This study identifies factors (state of residence, personal characteristics, and living situation) associated with access to self-directed funding (SDF) for adults with intellectual disability in the United States. Data from 10,033 participants from 26 states in the 2012–2013 National Core Indicators Adult Consumer Survey were analyzed. We examined state, age group, residence type, disability diagnoses, mental health status, and type of disability support funding used. Availability of SDF for people with ID varied by state and aligned mostly with state-by-state policy data on SDF eligibility and availability. The results of a logistic regression analysis demonstrated that access to SDF was lower in older adults and higher for people who lived in their parents' or relatives' home, an independent home, and with certain personal characteristics. Potential influences from policy and practice, and approaches to increase access to SDF are discussed.