What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

Oriani, A. and Guo, P. and Gadoud, A. and Dunleavy, L. and Kane, P. and Murtagh, F.E.M. (2019) What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS). Annals of Palliative Medicine, 8 (5). pp. 775-780. ISSN 2224-5820

[img] Text
ipos.pdf - Published Version
Available under License Unspecified.

Download (182kB)
[img] Text (Manuscript_revision_ipos)
Manuscript_revision_ipos.pdf - Accepted Version
Available under License Unspecified.

Download (231kB)

Abstract

There is a lack of valid disease-specific patient-reported outcome measures (PROMS) for detecting symptoms and concerns in patients with advanced chronic heart failure (CHF). The Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS) are specifically developed to capture the main symptoms and concerns of people severely affected by advanced disease. The aim of this study was to determine whether POS and IPOS captures the main symptoms and concerns self-reported by patients with advanced CHF secondary analysis of existing POS/IPOS data collected in three longitudinal studies was conducted. POS and IPOS start with an open-ended question for patients to report their main problems and concerns, followed by subsequent closed questions on a range of symptoms and other concerns. Descriptive statistics were used to report the results. The 102 participants from the three datasets had median age 81 years (SD +/- 9.84 years); 62% male; 87% white. A total of 107 concerns were reported in the first, open POS/IPOS question seeking the patient's main concerns. Of these, 83 (77%) were reflected in the subsequent IPOS/POS dosed questions. The high correspondence between the free-text responses and the dosed questions indicates that most issues are captured by the POS/IPOS items. In conclusion, the generic versions of POS and IPOS do capture the main problems and concerns of patients with advanced CHF. Minor adaptations and further psychometric validation of POS and IPOS are needed in this population.

Item Type: Journal Article
Journal or Publication Title: Annals of Palliative Medicine
Uncontrolled Keywords: /dk/atira/pure/subjectarea/asjc/2700
Subjects:
Departments: Faculty of Health and Medicine > Medicine
Faculty of Health and Medicine > Health Research
Faculty of Arts & Social Sciences > Lancaster Institute for the Contemporary Arts
ID Code: 139714
Deposited By: ep_importer_pure
Deposited On: 19 Dec 2019 16:40
Refereed?: Yes
Published?: Published
Last Modified: 24 Feb 2020 04:07
URI: https://eprints.lancs.ac.uk/id/eprint/139714

Actions (login required)

View Item View Item