Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations:A Meta-ethnography

De Souza, Joanna and Froggatt, Katherine and Walshe, Catherine and Gillett, Karen (2020) Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations:A Meta-ethnography. Palliative Medicine, 34 (2). pp. 195-208. ISSN 0269-2163

[img]
Text (Manuscript_Joanna_de_Souza)
Manuscript_Joanna_de_Souza.pdf - Accepted Version
Available under License Creative Commons Attribution-NonCommercial.

Download (352kB)

Abstract

Background: People of Black and minority ethnic heritage are more likely to die receiving life supporting measures and less likely to die at home. End-of-life care decision making often involves adult children as advance care planning is uncommon in these communities. Physicians report family distress as being a major factor in continuing with futile care. Aim: To develop a deeper understanding of the perspectives of elders of Black and minority ethnic heritage and their children, about end-of-life conversations that take place within the family, using a meta-ethnographic approach Design: Systematic interpretive exploration using the process of meta-ethnography was utilised. Data sources: CINAHL, MEDLINE, PubMed and PsycINFO databases were searched. Inclusion criteria included studies published between 2005 and 2019 and studies of conversations between ethnic minority elders and family about end-of-life care. Citation snowballing was used to ensure all appropriate references were identified. A total of 13 studies met the inclusion criteria and required quality level using Critical Appraisal Skills Programme. Results: The following four storylines were constructed: ‘My family will carry out everything for me; it is trust’; ‘No Mum, don’t talk like that’; ‘I leave it in God’s hands’; and ‘Who’s going to look after us?’ The synthesis reflected the dichotomous balance of trust and burden avoidance that characterises the perspectives of Black and minority ethnic elders to end-of-life care planning with their children.

Item Type:
Journal Article
Journal or Publication Title:
Palliative Medicine
Uncontrolled Keywords:
/dk/atira/pure/subjectarea/asjc/2700
Subjects:
ID Code:
137972
Deposited By:
Deposited On:
18 Oct 2019 09:20
Refereed?:
Yes
Published?:
Published
Last Modified:
15 Aug 2020 06:43