Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations:A Meta-ethnography

De Souza, Joanna and Froggatt, Katherine and Walshe, Catherine and Gillett, Karen (2020) Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations:A Meta-ethnography. Palliative Medicine, 34 (2). pp. 195-208. ISSN 0269-2163

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Abstract

Background: People of Black and minority ethnic heritage are more likely to die receiving life supporting measures and less likely to die at home. End-of-life care decision making often involves adult children as advance care planning is uncommon in these communities. Physicians report family distress as being a major factor in continuing with futile care. Aim: To develop a deeper understanding of the perspectives of elders of Black and minority ethnic heritage and their children, about end-of-life conversations that take place within the family, using a meta-ethnographic approach Design: Systematic interpretive exploration using the process of meta-ethnography was utilised. Data sources: CINAHL, MEDLINE, PubMed and PsycINFO databases were searched. Inclusion criteria included studies published between 2005 and 2019 and studies of conversations between ethnic minority elders and family about end-of-life care. Citation snowballing was used to ensure all appropriate references were identified. A total of 13 studies met the inclusion criteria and required quality level using Critical Appraisal Skills Programme. Results: The following four storylines were constructed: ‘My family will carry out everything for me; it is trust’; ‘No Mum, don’t talk like that’; ‘I leave it in God’s hands’; and ‘Who’s going to look after us?’ The synthesis reflected the dichotomous balance of trust and burden avoidance that characterises the perspectives of Black and minority ethnic elders to end-of-life care planning with their children.

Item Type: Journal Article
Journal or Publication Title: Palliative Medicine
Uncontrolled Keywords: /dk/atira/pure/subjectarea/asjc/2700
Subjects:
Departments: Faculty of Health and Medicine > Health Research
ID Code: 137972
Deposited By: ep_importer_pure
Deposited On: 18 Oct 2019 09:20
Refereed?: Yes
Published?: Published
Last Modified: 17 Feb 2020 04:43
URI: https://eprints.lancs.ac.uk/id/eprint/137972

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