Being the parent of a child with limb difference who has been provided with an artificial limb:An interpretative phenomenological analysis

Oliver, James and Dixon, Clare and Murray, Craig David (2019) Being the parent of a child with limb difference who has been provided with an artificial limb:An interpretative phenomenological analysis. Disability and Rehabilitation. ISSN 0963-8288

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Abstract

Purpose: Rehabilitative care for children with limb difference often includes the provision and use of an artificial (or prosthetic) limb. Of key influence in this process is how parents experience and respond to their child’s limb difference and prosthesis use. However, research on this is lacking. Therefore, this study aimed to explore the experiences of parenting a child with limb difference who had been provided with an artificial limb. Design: Semi-structured interviews took place with seven parents. Interview data was recorded, transcribed and analyzed using interpretative phenomenological analysis. Results: The analysis identified four themes: (1) managing the initial emotional experience through the development of coping resources; (2) opportunities through prosthesis use and its relationship with “normality”; (3) managing and making sense of social reactions toward their child; (4) the intrinsic role of support: developing a collective connection and enabling shared knowledge. Conclusions: The study highlighted salient aspects to parents’ experiences and sense-making that can inform clinical support. Emotional support, the management of social responses, and the holistic co-ordination of healthcare support with peer support networks are discussed. Healthcare professionals involved in the prosthetic rehabilitation process should look to explore these meanings to help support the management of the child’s prosthesis use.

Item Type: Journal Article
Journal or Publication Title: Disability and Rehabilitation
Additional Information: This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on 02/02/2019, available online: http://www.tandfonline.com/10.1080/09638288.2018.1543462
Uncontrolled Keywords: /dk/atira/pure/subjectarea/asjc/2700/2742
Subjects:
Departments: Faculty of Health and Medicine > Health Research
ID Code: 131169
Deposited By: ep_importer_pure
Deposited On: 13 Feb 2019 15:45
Refereed?: Yes
Published?: Published
Last Modified: 05 Dec 2019 05:08
URI: https://eprints.lancs.ac.uk/id/eprint/131169

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