Post-diagnostic lived experiences of individuals with essential tremor

Moore, Jessica and Eccles, Fiona Juliet Rosalind and Simpson, Jane (2019) Post-diagnostic lived experiences of individuals with essential tremor. Disability and Rehabilitation. ISSN 0963-8288

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Abstract

Purpose: This research study aimed to explore the lived experience of individuals with essential tremor. Method: This study was qualitative in nature and informed by interpretative phenomenological analysis methodology. Semi-structured interviews were conducted with a relatively homogenous sample of nine individuals with a diagnosis of essential tremor. Results: Three major themes were constructed: “But they often look at you like you’re some drug addict or smackhead”: Social attitudes to difference; “I just couldn’t do it anymore”: The restrictive nature of essential tremor; and “You’ve got to cope; you’ve got to learn to fight different ways”: Rescuing some normality amid physical deterioration. Conclusion: This study offers much needed experiential understanding and interpretation of one of the most prevalent neurological conditions with regard to the emotions associated with specific day-to-day experiences, the restrictions placed upon everyday practicalities and the coping strategies employed. This study has highlighted the need for health care professionals to provide individuals with information regarding psychological support, and a need for more public awareness campaigns centred around essential tremor.

Item Type: Journal Article
Journal or Publication Title: Disability and Rehabilitation
Additional Information: This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on 11/04/2019, available online: https://www.tandfonline.com/doi/full/10.1080/09638288.2019.1574915
Uncontrolled Keywords: /dk/atira/pure/subjectarea/asjc/2700/2742
Subjects:
Departments: Faculty of Health and Medicine > Health Research
ID Code: 131062
Deposited By: ep_importer_pure
Deposited On: 05 Feb 2019 14:55
Refereed?: Yes
Published?: Published
Last Modified: 05 Dec 2019 05:07
URI: https://eprints.lancs.ac.uk/id/eprint/131062

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