Perceptions of a Good Death in Children with Life-Shortening Conditions:An Integrative Review

Chong, Poh Heng and Walshe, Catherine and Hughes, Sean (2019) Perceptions of a Good Death in Children with Life-Shortening Conditions:An Integrative Review. Journal of Palliative Medicine, 22 (6). pp. 714-723. ISSN 1096-6218

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Abstract

BACKGROUND: For children with life-shortening illness, achieving a "good death" can be a tacit goal. There is little understanding of how different stakeholders perceive what a "good death" might be. OBJECTIVE: To review empirical literature to construct an understanding of a "good death" for children with life-shortening conditions. DESIGN: An integrative review approach was followed. This involved searching across Embase, Web of Science, Medline, CINAHL, and PsycINFO (no date limits set), as well as identifying eligible studies tracking reference lists. Appraisal of shortlisted articles in full text was performed, followed by data extraction, synthesis, and interpretation. RESULTS: Analysis of articles (n = 24) yielded a dynamic and layered narrative about a good death that revolved around three themes. (1) Level of needs: includes both practical support and aspirational goals such as "do everything." (2) The composite experience: whether positive or negative adds to produce a sense of suffering. (3) Control (preservation and letting go): moving from maintaining status quo to acceptance of the child's death, the experience of which also contributes to suffering. Framed using a health care system perspective, a concept map that interprets a good death in children with life-shortening conditions is represented. CONCLUSIONS: A single yet holistic understanding of a good death experienced in the "real world" is suggested. Pediatric health and social care providers, and even policy makers, can use this new understanding to conceive alternative approaches to enhance support to dying children and their families.

Item Type: Journal Article
Journal or Publication Title: Journal of Palliative Medicine
Additional Information: Final publication is available from Mary Ann Liebert, Inc., publishers http://dx.doi.org/10.1089/jpm.2018.0335
Uncontrolled Keywords: /dk/atira/pure/subjectarea/asjc/2700
Subjects:
Departments: Faculty of Health and Medicine > Health Research
ID Code: 130421
Deposited By: ep_importer_pure
Deposited On: 23 Jan 2019 11:10
Refereed?: Yes
Published?: Published
Last Modified: 13 Dec 2019 05:14
URI: https://eprints.lancs.ac.uk/id/eprint/130421

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