Physical and Psychological Distress Are Related to Dying Peacefully in Residents with Dementia in Long-Term Care Facilities

De Roo, Maaike L. and Albers, Gwenda and Deliens, Luc and De Vet, Henrica C.W. and Francke, Anneke L. and Van Den Noortgate, Nele and Van Den Block, Lieve and De Groote, Zeger and Brearley, Sarah and Caraceni, Augusto and Cohen, Joachim and Francke, Anneke and Harding, Richard and Higginson, Irene J. and Kaasa, Stein and Linden, Karen and Miccinesi, Guido and Onwuteaka-Philipsen, Bregje and Pardon, Koen and Pasman, Roeline and Pautex, Sophie and Payne, Sheila and Lucdeliens, (2015) Physical and Psychological Distress Are Related to Dying Peacefully in Residents with Dementia in Long-Term Care Facilities. Journal of Pain and Symptom Management, 50 (1). pp. 1-8. ISSN 0885-3924

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Abstract

Context Although dying peacefully is considered an important outcome of high-quality palliative care, large-scale quantitative research on dying peacefully and the factors associated with a peaceful death is lacking. Objectives To gain insight into how many residents with dementia in long-term care facilities die peacefully, according to their relatives, and whether that assessment is correlated with observed physical and psychological distress. Methods This was a retrospective cross-sectional study of deceased nursing home residents in a representative sample of long-term care facilities in Flanders, Belgium (2010). Structured post-mortem questionnaires were completed by relatives of the resident, who were asked to what extent they agreed that the resident "appeared to be at peace" during the dying process. Spearman correlation coefficients gave the correlations between physical and psychological distress (as measured using the Symptom Management at the End of Life with Dementia and Comfort Assessment in Dying at the End of Life with Dementia scales) and dying peacefully (as measured using the Quality of Dying in Long Term Care instrument). Results The sample comprised 92 relatives of deceased residents with dementia. In 54% of cases, relatives indicated that the resident died peacefully. Weak-to-moderate correlations (0.2-0.57) were found between dying peacefully and physical distress in the last week of life. Regarding psychological distress, weak-to-moderate correlations were found for both the last week (0.33-0.44) and last month of life (0.28-0.47). Conclusion Only half of the residents with dementia died peacefully as perceived by their relatives. Relatives' assessment of whether death was peaceful is related to both physical and psychological distress. Further qualitative research is recommended to gain more in-depth insights into the aspects on which relatives base their judgment of dying peacefully.

Item Type: Journal Article
Journal or Publication Title: Journal of Pain and Symptom Management
Uncontrolled Keywords: /dk/atira/pure/subjectarea/asjc/2700/2703
Subjects:
Departments: Faculty of Health and Medicine > Health Research
Faculty of Health and Medicine
ID Code: 129732
Deposited By: ep_importer_pure
Deposited On: 22 Jun 2019 08:52
Refereed?: Yes
Published?: Published
Last Modified: 23 Oct 2019 06:39
URI: https://eprints.lancs.ac.uk/id/eprint/129732

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