Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower):Protocol for a Nonrandomized Feasibility Trial

Lasrado, Reena and Bielsten, Therése and Hann, Mark and Davies, Linda and Schumm, James and Reilly, Siobhan and Swarbrick, Caroline and Keady, John and Hellström, Ingrid (2018) Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower):Protocol for a Nonrandomized Feasibility Trial. JMIR Research Protocols, 7 (8). ISSN 1929-0748

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Abstract

BACKGROUND: The increasing rate of dementia and high health and social care costs call for effective measures to improve public health and enhance the wellbeing of people living with dementia and their relational networks. Most postdiagnostic services focus on the condition and the person with dementia with limited attention to the caring spouse or partner. The key focus of the study is to develop a guide for couples where one partner has a diagnosis of dementia. This couple management guide is delivered in the form of an app, DemPower. OBJECTIVE: This study aims to investigate the feasibility and acceptability of DemPower and to assess the criteria for a full-integrated clinical and economic randomized control trial. DemPower couple management app will be introduced to couples wherein one partner has dementia. METHODS: The study will recruit 25 couples in the United Kingdom and 25 couples in Sweden. Couples will be given 3 months to engage with the app, and the amount of time taken to complete the guide (can be <3 or >3 months) will be reviewed. A set of outcome measures will be obtained at baseline and postintervention stages. RESULTS: The proposed study is at the recruitment phase. The DemPower app is being introduced to couples from consultation groups at a pretrial phase for identifying any bugs and exploring if any navigation challenges exist. The feasibility testing will begin in April 2018. CONCLUSIONS: The study will determine how much support couples need to engage with DemPower and whether or not they make use of it in their everyday lives. If there is support for app use, a future study will assess whether it is superior to "usual care." TRIAL REGISTRATION: International Standard Randomized Controlled Trial Number (ISRCTN): 10122979; http://www.isrctn.com/ISRCTN10122979 (Archived by WebCite at http://www.webcitation.org/70rB1iWYI). REGISTERED REPORT IDENTIFIER: RR1-10.2196/9087.

Item Type:
Journal Article
Journal or Publication Title:
JMIR Research Protocols
Additional Information:
©Reena Lasrado, Therése Bielsten, Mark Hann, Linda Davies, James Schumm, Siobhan Reilly, Caroline Swarbrick, John Keady, Ingrid Hellström. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 10.08.2018.
Subjects:
ID Code:
127093
Deposited By:
Deposited On:
28 Aug 2018 09:42
Refereed?:
Yes
Published?:
Published
Last Modified:
23 Sep 2020 04:32