MORECare research methods guidance development: recommendations for health economic evaluations in palliative and end of life care research

Preston, Nancy and Short, V. and Hollingworth, W. and McCrone, P. and Grande, G. and Evans, C. and Anscombe, E. and Benalia, H. and Higginson, I. J. and Todd, C. (2012) MORECare research methods guidance development: recommendations for health economic evaluations in palliative and end of life care research. Palliative Medicine, 26 (4). p. 541. ISSN 0269-2163

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Abstract

Aims: To identify agreed best practice for health economic evaluation in palliative and end of life (P&EoLC) research. Methods: We used the MORECare Transparent Expert Consultation approach to conduct consultation workshops with experts in health economics in P&EoLC research. Prior to workshops participants were sent overviews of pertinent issues in health economics in P&EoLC. Following workshop presentations and discussion, nominal group techniques were used to produce candidate recommendations. These were subsequently rated online by participating experts. Descriptive statistics were used to permit analysis of consensus and rated importance. Narrative comments were collated. Results: The workshop comprised 28 participants making 27 recommendations. The top three recommendations were: 1. The need to develop robust methods for assessing outcomes which take into account preferences and the way these change over time. 2. Researchers should give consideration to the implications of decisions on the equitable distribution of care. 3. Costing should be from the societal perspective and as well as statutory services include costs of other formal care (e.g. hospices and third sector) and informal care unless a clear rationale for using a different perspective is provided. The main area which failed to reach consensus were on the use of Quality Adjusted Life Years (QALYs) and whether individual opportunity costs should be used to measure the costs of informal care. Conclusions: When designing studies in P&EoLC it is recommended that outcome measures are responsive over time and costings should come from a societal perspective taking into account the equitable distribution of care. More research is needed given the lack of consensus in this area so that future recommendations can be made.

Item Type:
Journal Article
Journal or Publication Title:
Palliative Medicine
Uncontrolled Keywords:
/dk/atira/pure/core/keywords/health/supportiveandendoflifecare
Subjects:
?? supportive and end of life careanesthesiology and pain medicinemedicine(all)r medicine (general) ??
ID Code:
58664
Deposited By:
Deposited On:
27 Sep 2012 12:38
Refereed?:
Yes
Published?:
Published
Last Modified:
28 Nov 2023 11:50