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Experiences of spouses of people with dementia in long-term care

Mullin, Jennifer and Simpson, Jane and Froggatt, Katherine (2013) Experiences of spouses of people with dementia in long-term care. Dementia, 12 (2). pp. 177-191. ISSN 1471-3012

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Abstract

The experiences of 10 spouses of people with dementia in long-term care were explored using semi-structured interviews. The data were analysed using interpretative phenomenological analysis (IPA) which resulted in four themes: ‘Identity: till death us do part’; ‘Making sense of change’; ‘Relationship with care provided: visiting as surveillance’; and ‘Relationship with the future: hope versus despair’. The findings highlighted the presence of conflicting feelings for the spouses, with positive feelings being voiced against a context of despair. Their perceptions of the care provided and the spousal relationship also highlighted the value of their views in supporting this group of people, improving dementia care and, hence, the importance of their involvement in implementing a ‘relationship-centred’ care approach.

Item Type: Article
Journal or Publication Title: Dementia
Uncontrolled Keywords: dementia ; interpretative phenomenological analysis ; long-term care ; spouses
Subjects: R Medicine > R Medicine (General)
Departments: Faculty of Health and Medicine > Health Research
ID Code: 56460
Deposited By: ep_importer_pure
Deposited On: 30 Jul 2012 14:39
Refereed?: Yes
Published?: Published
Last Modified: 23 Apr 2013 08:47
Identification Number:
URI: http://eprints.lancs.ac.uk/id/eprint/56460

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