Abbott, J. and Holt, A. and Morton, A M and Hart, Anna and Milne, G and Wolfe, S E and Conway, S (2012) Patient indicators of a pulmonary exacerbation: preliminary reports from school aged children map onto those of adults. Journal of Cystic Fibrosis, 11 (3). pp. 180-186. ISSN 1569-1993Full text not available from this repository.
Background Despite the importance of identifying and managing a pulmonary exacerbation, and its use as an outcome measure in interventions, there is no standardised definition in cystic fibrosis. In achieving standardised criteria it is important to identify patient-reported indicators. Methods Interviews were undertaken with 35 school aged children. They reported symptoms experienced during a pulmonary exacerbation in two ways: the first symptoms they become aware of, and how they recognised when they were improving. Interviews were taped, transcribed verbatim and the data analysed thematically. Results For many children, the onset of an exacerbation was characterised by ‘cold’ symptoms, tiredness, and changes in cough. For those with moderate or severe disease, sleep disruption, activity induced breathlessness, changes in mood, sputum volume and lack of appetite were common. When describing improvement children focused initially on activities they were now able to perform accompanied by improvements in tiredness and cough. Those with moderate or severe disease also reported improvements in sleep and mood, breathlessness, sputum volume and colour.
|Journal or Publication Title:||Journal of Cystic Fibrosis|
|Subjects:||B Philosophy. Psychology. Religion > BF Psychology|
|Departments:||Faculty of Health and Medicine > Medicine|
|Deposited On:||10 May 2012 12:16|
|Last Modified:||26 Jul 2012 20:22|
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