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How much does intellectual disability really cost? First estimates for Australia

Doran, Christopher M. and Einfeld, Stewart L. and Madden, Rosamond and Otim, Michael and Horstead, Sian K. and Ellis, Louise A. and Emerson, Eric (2012) How much does intellectual disability really cost? First estimates for Australia. Journal of Intellectual and Developmental Disability, 37 (1). pp. 42-49. ISSN 1366-8250

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Abstract

Background Given the paucity of relevant data, this study estimates the cost of intellectual disability (ID) to families and the government in Australia. Method Family costs were collected via the Client Service Receipt Inventory, recording information relating to service use and personal expense as a consequence of ID. Government expenditure on the provision of support and services was estimated using top-down costing. Results A total of 109 parents participated. The cost of ID in Australia is high, especially for families. Total economic costs of ID are close to $14,720 billion annually. Opportunity cost of lost time provided 85% of family expense. A comparison of family expense and social welfare benefits received suggests that families suffer considerable loss. This may impact on families’ physical and emotional wellbeing. Conclusions Monitoring of changes in expenditure is required. Policies should ensure that money devoted to ID is allocated in a rational, equitable, and cost-effective manner.

Item Type: Article
Journal or Publication Title: Journal of Intellectual and Developmental Disability
Uncontrolled Keywords: cost ; intellectual disability ; families
Subjects: R Medicine > R Medicine (General)
Departments: Faculty of Health and Medicine > Health Research
ID Code: 53693
Deposited By: ep_importer_pure
Deposited On: 24 Apr 2012 11:01
Refereed?: Yes
Published?: Published
Last Modified: 21 Nov 2014 14:36
Identification Number:
URI: http://eprints.lancs.ac.uk/id/eprint/53693

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