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Enterprising or altruistic selves?:making up research subjects in genetics research

Tutton, Richard and Prainsack, Barbara (2011) Enterprising or altruistic selves?:making up research subjects in genetics research. Sociology of Health and Illness, 33 (7). pp. 1081-1095. ISSN 0141-9889

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Abstract

The emergence of direct-to-consumer (DTC) personal genomics companies in 2007 was accompanied by considerable media attention and criticism from clinical geneticists and other health professionals, regulators, policy advisors, and ethicists. As well as offering genetic testing services, some firms are also engaged in building their own databases and conducting research with the data obtained from their customers. In this paper, we examine how one of these companies, 23andMe, is creating a certain kind of 'research subject' in opposition to that constituted in conventional forms of disease research. Drawing on debates about neoliberalism, contemporary health discourses and subjectivity, we consider two kinds of subjectivities produced through the discursive and material practices of 23andMe and UK Biobank, namely, 'enterprising' and 'altruistic' selves. We argue that the 23andMe model promotes the idea that curiosity about one's genome on the one hand, and participation in research on the other, are not only compatible but complementary aspects of being an entrepreneurial subject of contemporary health and medicine framed by the technologies of web 2.0.

Item Type: Article
Journal or Publication Title: Sociology of Health and Illness
Additional Information: © 2011 The Authors. Sociology of Health & Illness © 2011 Foundation for the Sociology of Health & Illness/Blackwell Publishing Ltd.
Uncontrolled Keywords: research participation ; personal genomics ; subjectivity ; internet ; biobanking
Subjects: H Social Sciences > HM Sociology
Departments: Faculty of Arts & Social Sciences > Sociology
ID Code: 51396
Deposited By: ep_importer_pure
Deposited On: 24 Nov 2011 10:27
Refereed?: Yes
Published?: Published
Last Modified: 27 Feb 2014 16:37
Identification Number:
URI: http://eprints.lancs.ac.uk/id/eprint/51396

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