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What defines a pulmonary exacerbation?:the perceptions of adults with cystic fibrosis

Abbott, Janice and Holt, A and Hart, Anna and Morton, A and MacDougall, L and Pogson, M and Milne, G and Rodgers, H and Conway, S (2009) What defines a pulmonary exacerbation?:the perceptions of adults with cystic fibrosis. Journal of Cystic Fibrosis, 8 (5). pp. 356-359.

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Abstract

Background There is no standardised definition of a pulmonary exacerbation in cystic fibrosis (CF). In attempting to achieve standardised criteria it is important to identify patient-reported indicators. Methods Interviews were undertaken with 47 adults with CF. Participants were asked to report symptoms experienced during a pulmonary exacerbation in two ways: the first symptoms they become aware of, and how they subsequently recognised when they were improving. Results A range of systemic and respiratory symptoms were reported. Their relative importance varied by severity of disease. The severity and subsequent improvement of an exacerbation was often described as limitations on their activities. Conclusion These preliminary data suggest that patient-reported indicators of a pulmonary exacerbation may not be the same for all adults with CF. Whether different indicators are associated with specific demographic or clinical variables remains to be evaluated.

Item Type: Article
Journal or Publication Title: Journal of Cystic Fibrosis
Uncontrolled Keywords: Pulmonary exacerbation ; Respiratory symptoms ; Patient-reported outcome ; Qualitative data
Subjects:
Departments: Faculty of Health and Medicine > Medicine
ID Code: 50709
Deposited By: ep_importer_pure
Deposited On: 03 Nov 2011 11:30
Refereed?: Yes
Published?: Published
Last Modified: 21 Sep 2017 04:38
Identification Number:
URI: http://eprints.lancs.ac.uk/id/eprint/50709

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