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Majority and Minority Ethnic Family Carers of Adults with Intellectual Disabilities:Perceptions of challenging behaviour and family impact

Hatton, Chris and Emerson, Eric and Kirby, S. and Kotwal, Homayra and Baines, Susannah and Hutchinson, Christine and Dobson, K. and Marks, B (2010) Majority and Minority Ethnic Family Carers of Adults with Intellectual Disabilities:Perceptions of challenging behaviour and family impact. Journal of Applied Research in Intellectual Disabilities, 23 (1). pp. 63-74. ISSN 1360-2322

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Abstract

Background A health service in an English city was concerned about its support to families with adults with intellectual disabilities and challenging behaviour. Methods Semi-structured interviews were conducted with seven minority ethnic and seven majority ethnic family members to explore perceptions of challenging behaviour, support and the impact of the person on the family. These were analysed using interpretative phenomenological analysis. Results Four themes emerged: (i) A broad range of difficulties with the adult with intellectual disabilities. (ii) Varied relationships with local communities in acceptance and support. (iii) Varied but largely negative relationships with services. (iv) Varied relationships with the person with intellectual disabilities, from highly dependent relationships with negative consequences to more fulfilling relationships. Families from minority ethnic communities were more likely to report negative experiences. Conclusions ‘Challenging behaviour’ services need to be considered within a much broader social and community context.

Item Type: Article
Journal or Publication Title: Journal of Applied Research in Intellectual Disabilities
Uncontrolled Keywords: adults;challenging behaviour;ethnicity;families;intellectual disabilities
Subjects: UNSPECIFIED
Departments: Faculty of Health and Medicine > Health Research
ID Code: 49135
Deposited By: ep_importer_pure
Deposited On: 22 Jul 2011 14:14
Refereed?: Yes
Published?: Published
Last Modified: 26 Mar 2013 18:12
Identification Number:
URI: http://eprints.lancs.ac.uk/id/eprint/49135

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