McAllister, Marion and Payne, Katherine and MacLeod, Rhona and Nicholls, Stuart and Donnai, Dian and Davies, Linda M. (2008) What process attributes of clinical genetics services could maximise patient benefits? European Journal of Human Genetics, 16. pp. 1467-1476. ISSN 1018-4813Full text not available from this repository.
There is limited evidence about what process attributes of clinical genetics services may be highly valued by patients and service providers. The aim in this qualitative grounded theory study was to explore what process attributes may be highly valued by those stakeholders. Seven focus groups (n=33) and nineteen one-to-one interviews were conducted (total sample size=52). Five process attributes were identified as highly valued by patients and health professionals: (1) local and accessible services (2) open access and follow-up, (3) coordinated, tailored family care, (4) quality of the patient–clinician relationship and (5) time to talk. These findings will be useful in designing models of service delivery that could be tested in intervention studies.
|Journal or Publication Title:||European Journal of Human Genetics|
|Subjects:||Q Science > QA Mathematics|
Q Science > QH Natural history > QH426 Genetics
|Departments:||Faculty of Arts & Social Sciences > Politics & International Relations (Merged into PPR 2010-08-01)|
Faculty of Science and Technology > Mathematics and Statistics
|Deposited By:||Dr Stuart Nicholls|
|Deposited On:||13 Jan 2011 13:13|
|Last Modified:||26 Jul 2012 17:52|
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