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Knowledge or understanding? Informed choice in the context of newborn bloodspot screening.

Nicholls, Stuart G (2010) Knowledge or understanding? Informed choice in the context of newborn bloodspot screening. Public Health Ethics, 3 (2). pp. 128-136. ISSN 1754-9973

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Abstract

The UK has a long established programme of newborn bloodspot screening. This operates under a model of informed choice. Understanding is central to the `informed' element of an informed choice yet it is rarely assessed. To date most research within the context of newborn bloodspot screening has focussed on parental recall of information. In this paper I argue that simplistic assessments of knowledge through recall fail to reflect more complex notions of understanding. In support of this contention I draw on qualitative interviews with parents of children who have undergone newborn bloodspot screening.

Item Type: Article
Journal or Publication Title: Public Health Ethics
Uncontrolled Keywords: consent ; informed choice ; recall ; interviews ; heel prick
Subjects: Q Science > QA Mathematics
Departments: Faculty of Arts & Social Sciences > Politics & International Relations (Merged into PPR 2010-08-01)
Faculty of Science and Technology > Mathematics and Statistics
ID Code: 34960
Deposited By: Dr Stuart Nicholls
Deposited On: 13 Jan 2011 13:07
Refereed?: No
Published?: Published
Last Modified: 26 Jul 2012 17:43
Identification Number:
URI: http://eprints.lancs.ac.uk/id/eprint/34960

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