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User involvement in palliative care : motivational factors for service users and professionals.

Sargeant, Anita and Payne, Sheila and Gott, Merryn and Small, Neil and Oliviere, David (2007) User involvement in palliative care : motivational factors for service users and professionals. Progress in Palliative Care, 15 (3). pp. 126-132. ISSN 1743-291X

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Background: Few studies shed light on what motivates or discourages patients, carers and professionals for participating in user involvement activities. Aim: To identify motivational factors that affect the engagement of service users and professionals with user-involvement activities. Methods: As part of a larger scoping study of user involvement in palliative care, 51 semistructured interviews were conducted with service users, palliative care professionals and experts to explore experiences of user-involvement initiatives. Four user-involvement programmes were also observed. Data were analysed using a thematic analysis technique. A subsequent consultation meeting with 48 service users and professionals discussed the preliminary findings. Results: User involvement has been predominantly developed through a 'top-down' professional agenda. A few highly motivated individuals, both service users and palliative care professionals, are extremely influential in starting and maintaining user involvement. Reported benefits include personal satisfaction and status but barriers are tokenism and time pressures.

Item Type: Article
Journal or Publication Title: Progress in Palliative Care
Subjects: R Medicine > R Medicine (General)
Departments: Faculty of Health and Medicine > Health Research
ID Code: 32632
Deposited By: Mr Richard Ingham
Deposited On: 01 Apr 2010 09:25
Refereed?: Yes
Published?: Published
Last Modified: 19 Nov 2017 11:24
Identification Number:

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