Sargeant, Anita and Payne, Sheila and Gott, Merryn and Small, Neil and Oliviere, David (2007) User involvement in palliative care : motivational factors for service users and professionals. Progress in Palliative Care, 15 (3). pp. 126-132.Full text not available from this repository.
Background: Few studies shed light on what motivates or discourages patients, carers and professionals for participating in user involvement activities. Aim: To identify motivational factors that affect the engagement of service users and professionals with user-involvement activities. Methods: As part of a larger scoping study of user involvement in palliative care, 51 semistructured interviews were conducted with service users, palliative care professionals and experts to explore experiences of user-involvement initiatives. Four user-involvement programmes were also observed. Data were analysed using a thematic analysis technique. A subsequent consultation meeting with 48 service users and professionals discussed the preliminary findings. Results: User involvement has been predominantly developed through a 'top-down' professional agenda. A few highly motivated individuals, both service users and palliative care professionals, are extremely influential in starting and maintaining user involvement. Reported benefits include personal satisfaction and status but barriers are tokenism and time pressures.
|Journal or Publication Title:||Progress in Palliative Care|
|Uncontrolled Keywords:||PALLIATIVE CARE ; USER INVOLVEMENT ; PATIENTS AND CARERS ; HEALTH PROFESSIONALS|
|Subjects:||R Medicine > R Medicine (General)|
|Departments:||Faculty of Health and Medicine > Health Research|
|Deposited By:||Mr Richard Ingham|
|Deposited On:||01 Apr 2010 09:25|
|Last Modified:||19 Mar 2013 11:10|
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