Horne, Gillian and Payne, Sheila (2004) Removing the boundaries : palliative care for patients with heart failure. Palliative Medicine, 18 (4). pp. 291-296. ISSN 1477-030XFull text not available from this repository.
Aim: This study aimed to explore the experiences of patients with severe heart failure and identify their needs for palliative care. Method: A qualitative design was chosen. Semistructured interviews were used for data collection and patients were interviewed in their homes. The sample consisted of 20 patients with a confirmed diagnosis of heart failure. Patients were between 60 and 83 years. Results: Patients reported difficulties in walking, extreme fatigue and problems managing daily activities. Having to rely on family, friends and neighbours was common, causing feelings of being a burden, loneliness and isolation. Patients talked about dying as well as their fears and frustrations in living with heart failure. Barriers to accessing information and social services were identified. None of these patients had been referred to specialist palliative care services. Conclusions: Patients' experiences were similar to those of patients living with advanced cancer and yet they received little support. Comprehensive routine assessment of the palliative care needs of patients living with severe heart failure is recommended.
|Journal or Publication Title:||Palliative Medicine|
|Uncontrolled Keywords:||heart failure • lived experience • palliative care • qualitative research|
|Subjects:||R Medicine > R Medicine (General)|
|Departments:||Faculty of Health and Medicine > Health Research|
|Deposited By:||Mr Richard Ingham|
|Deposited On:||30 Mar 2010 09:55|
|Last Modified:||23 Sep 2016 01:08|
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