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Development of a disease specific quality of life (QoL) questionnaire module to supplement the EORTC core cancer QoL questionnaire, the QLQ-C30 in patients with pancreatic cancer.

Fitzsimmons, D. and Johnson, C. D. and George, S. and Payne, Sheila and Andrén Sandberg, A. and Bassi, C. and Beger, H. G. and Birk, D. and Büchler, M. W. and Dervenis, C. and Fernandez Cruz, L. and Friess, H. and Grahm, A. L. and Jeekel, J. and Laugier, R. and Meyer, D. and Singer, M. W. and Tihanyi, T. and EORTC Study Group on Quality of Life, The (1999) Development of a disease specific quality of life (QoL) questionnaire module to supplement the EORTC core cancer QoL questionnaire, the QLQ-C30 in patients with pancreatic cancer. European Journal of Cancer, 35 (6). pp. 939-941. ISSN 0959-8049

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Abstract

There is overwhelming consensus that quality of life assessment is urgently required in pancreatic cancer, yet little research has been conducted. We report on the development of a disease specific questionnaire module to supplement the EORTC core cancer module, the QLQ-C30 in patients with pancreatic cancer, using EORTC quality of life study group guidelines for module development. Relevant QoL issues were generated from literature searches and interviews with health professionals and patients with pancreatic cancer. Issues were constructed into items and provisionally translated. The provisional module was pretested in patients in 8 European centres. The resulting module the QLQ-PAN26 includes 26 items related to disease symptoms, treatment side-effects and emotional issues specific to pancreatic cancer. This should ensure that the module will be sensitive to assess the small but important disease and treatment related QoL changes in pancreatic cancer. The use of the QLQ-C30 and QLQ-PAN26 will provide a comprehensive system of QoL assessment in international trials of pancreatic cancer.

Item Type: Article
Journal or Publication Title: European Journal of Cancer
Uncontrolled Keywords: pancreatic neoplasm ; quality of life ; EORTC QLQ-C30 ; questionnaire
Subjects: R Medicine > R Medicine (General)
Departments: Faculty of Science and Technology > Lancaster Environment Centre
Faculty of Health and Medicine > Health Research
ID Code: 32448
Deposited By: Mr Richard Ingham
Deposited On: 25 Mar 2010 16:04
Refereed?: Yes
Published?: Published
Last Modified: 26 Jul 2012 17:10
Identification Number:
URI: http://eprints.lancs.ac.uk/id/eprint/32448

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