Lancaster EPrints

Approaching the end of life and dying with dementia in care homes : the accounts of family carers.

Hennings, J. and Froggatt, Katherine and Keady, J. (2010) Approaching the end of life and dying with dementia in care homes : the accounts of family carers. Reviews in Clinical Gerontology, 20 (2). pp. 114-127. ISSN 0959-2598

[img]
Preview
PDF (download.pdf)
Download (88Kb) | Preview

    Abstract

    Research into end of life and dying with dementia in care homes from the family carer's perspective is limited. From the available evidence, it appears that family carers find themselves in an unfamiliar situation about which they lack knowledge and experience. Whilst dementia tends not to be acknowledged as a terminal illness by many family carers, they are expected to make end of life decisions on behalf of their relatives. Family carer decision-making is underpinned by values of quality of life, previously expressed wishes, comfort provision and dignity preservation. This is often approached when family carers are grieving for the anticipated loss of their relative and have their own personal needs that require to be addressed. Within a care home setting, a curative care–palliative care split is unhelpful in resolving these tensions and a model of comprehensive care appears a more appropriate approach. This requires ongoing communication between the person with dementia, family members and professionals from the early stages of the condition.

    Item Type: Article
    Journal or Publication Title: Reviews in Clinical Gerontology
    Additional Information: http://journals.cambridge.org/action/displayJournal?jid=RCG The final, definitive version of this article has been published in the Journal, Reviews in Clinical Gerontology, 20 (2), pp 114-127 2010, © 2010 Cambridge University Press.
    Uncontrolled Keywords: care homes ; nursing homes ; dementia ; family carer ; end of life ; dying
    Subjects: R Medicine > R Medicine (General)
    Departments: Faculty of Health and Medicine > Health Research
    ID Code: 31965
    Deposited By: Mr Richard Ingham
    Deposited On: 01 Mar 2010 09:48
    Refereed?: Yes
    Published?: Published
    Last Modified: 19 Mar 2013 14:58
    Identification Number:
    URI: http://eprints.lancs.ac.uk/id/eprint/31965

    Actions (login required)

    View Item